These videos are very hard for us to watch. They are a few of the videos we took of Harrison. We want to share them here because we hope that they will in some way help others who are searching for answers.
Harrison was special in many ways, but specifically in his physical development. The doctors had never seen a baby with his specific combination of physical disabilities. There were never any answers as to what exactly was wrong with Harrison. We have a lot of terms that were used to describe his aliments or symptoms but nothing that every explained the cause.
Terms like: myopathy, congenital hypotonia and many more.
So we offer these very private, sad and inspiring videos to the world in hopes that they will help someone else in some small way. We know what it is like to be searching for answers that do not appear to exist. We know what it is like to be online fighting for information that might possibly save our child.
While Harrison passed away at 5 months that doesn’t mean that the next child with similar symptoms can’t live and thrive. So these videos are offered for anyone to view, but specifically for those looking for answers. I can’t promise that these videos will provide answers but they may help you feel so not alone.