[vc_row][vc_column][vc_column_text]<\/p>\n

Our beautiful 2-and-a-half-year-old Stella was diagnosed with a rare metabolic disease called Niemann-Pick type C, also known as childhood Alzheimer\u2019s.<\/em><\/span><\/p>\n

She is rapidly losing skills, including her catch phrase, \u201cthank you\u201d, which I will never forget how her little voice sounded when she said it, for EVERYTHING, even after I changed her diaper!\u00a0 She will never walk, has lost the ability to sit on her own, and now has a feeding tube to eat, but she ALWAYS finds a way to have a smile on her face, a sweet laugh for a tickle on her neck, and she still says, \u201cMom\u201d, and kisses me on the cheek.<\/em><\/span><\/p>\n

We are currently seeking financial assistance, since her insurance doesn\u2019t cover her formula, which costs about $184 a week.\u00a0 She has therapies Mondays, Tuesdays, and Thursdays, but recently had to cancel Thursday\u2019s, due to missing too much work.<\/em><\/span><\/p>\n

Stella is the sweetest little person, and it\u2019s my life\u2019s biggest heartache that this world cannot keep her.<\/em><\/span><\/p>\n

Mom<\/em><\/span>[\/vc_column_text][vc_column_text][\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_column_text] Our beautiful 2-and-a-half-year-old Stella was diagnosed with a rare metabolic disease called Niemann-Pick type C, also known as childhood Alzheimer\u2019s. She is rapidly losing skills, including her catch phrase, \u201cthank you\u201d, which I will never forget how her little voice sounded when she said it, for EVERYTHING, even after I changed her diaper!\u00a0 She […]<\/p>\n","protected":false},"author":1,"featured_media":2641,"parent":1056,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"class_list":{"0":"post-2557","1":"page","2":"type-page","3":"status-publish","4":"has-post-thumbnail","6":"entry"},"_links":{"self":[{"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/pages\/2557","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/comments?post=2557"}],"version-history":[{"count":5,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/pages\/2557\/revisions"}],"predecessor-version":[{"id":2933,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/pages\/2557\/revisions\/2933"}],"up":[{"embeddable":true,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/pages\/1056"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/media\/2641"}],"wp:attachment":[{"href":"https:\/\/hopefromharrison.org\/wp-json\/wp\/v2\/media?parent=2557"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}